Racefor7: Spreading Awareness for Rare Diseases Across India
Newzdaddy Healthcare Updates
ORDI Requests:
- The Government, to allot a specific budget for the patients and parents of these rare diseases.
- Pharmaceutical companies, to do more research and develop medications to cure these diseases.
- Medical Hospitals, take care of these patients in a separate way.
- To Schools and Educational Institutes, to make arrangements for education for these children.
The Organization for Rare Diseases India (ORDI) is gearing up for its annual flagship event, Racefor7, a marathon aimed at raising awareness about rare diseases in India. Scheduled to take place across 15 cities on February 25, the event serves as a platform to educate the public about the challenges faced by individuals and families affected by rare diseases.
Expansion and Reach
Originating in Bengaluru in 2016, Racefor7 has evolved into a nationwide movement, with participation expected from over 20,000 individuals this year. The event will span cities including Mumbai, Delhi, Hyderabad, Kolkata, Ahmedabad, Chennai, Kochi, Pune, Mysuru, Davangere, Hubballi, Asansol, Kozhikode, and Coimbatore. Emphasizing the theme “ONE NATION, ONE DAY – TOGETHER FOR RARE,” Racefor7 aims to unite communities across India in support of rare disease patients.
The Ahmedabad leg of Racefor7 will kick off from LJ University grounds in Makarba, Ahmedabad, with the run commencing at 7 am. The event will be inaugurated by IPS ACP Mr. Neeraj Badgujarand. Participants can register for the marathon through the Racefor7 website.
Support from Dignitaries
IPS ACP Mr. Neeraj Badgujarand expressed his support for the cause of rare diseases, encouraging individuals to join the multi-city marathon on February 25. His endorsement underscores the importance of collective action in raising awareness and finding solutions for rare disease patients.
Mrs. Jaya Shrivastava, Gujarat Coordinator for Racefor7, highlighted the event’s significant role in fostering awareness and development within India’s rare disease ecosystem. Over the past eight years, Racefor7 has garnered attention from policymakers, stakeholders, and the global community, positioning India as a proactive player in addressing rare diseases. The theme “ONE NATION, ONE DAY- TOGETHER FOR RARE” underscores the collective effort required to support rare disease patients and improve access to therapies, research, and long-term care.
Partnership and Sponsorship
ORDI’s longstanding partnership with sponsors, including Jinu Jose, Vice President of Research & Development Solutions, India, reflects a commitment to supporting rare disease communities and raising awareness about their challenges. The collaborative effort ensures the success of Racefor7 and facilitates meaningful contributions to the rare disease cause.
Registration Details and Categories
Participants can register for Racefor7 at a fee of INR 699 for regular runners, with a discounted rate of INR 399 for students. Rare disease patients, individuals with disabilities, and their caregivers can participate free of charge. Participants in this category will receive a kit containing a T-shirt, medal, e-certificate, and complimentary breakfast, fostering inclusivity and support within the marathon community.
You can register your entries on the official website:
Expanding upon the significance and impact of Racefor7, this year’s event promises to amplify awareness and advocacy for rare diseases across India. With support from dignitaries, sponsors, and participants, Racefor7 stands as a testament to the collective effort in addressing the unique challenges faced by rare disease patients and their families.
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